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Cancer Survivor & Caregiver Side Effects Resources

Print the Side Effect Support patient brochures!

English Adult Version:
patient brochure
Spanish Adult Version:
Pediatric Version:
Pediatric Version
Spanish Pediatric Version:
Patient Empowerment Network (PEN)'s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome. Our programs enhance patient health literacy to enable shared decision-making and provide informational and educational resources to empower patients and care partners at every step of their cancer journey.
The Confessions of a Reluctant Caregiver podcast offers a candid, unfiltered space to confess the good, the bad, and the ugly of being a caregiver through storytelling, guest interviews, and information sharing. JJ, Natalie, and Emilie are a trio of sisters supporting their mom living with Parkinson's and a husband who is a head and neck cancer survivor. Along with their guests, they discuss their shared experiences in caregiving. Viewers and listeners alike will relate to our reluctance, be affirmed in their ability to be caregivers and gain the courage to confidently step out of the shadows to express their own needs. You are sure to laugh, cry, and everything in between but in the end, all will leave feeling better for the journey and part of the sisterhood of care. So grab your favorite guilty pleasure, and let's get to confessing!
Oral Cancers; do you know what to look for?
Download your free Six-Step Screening resource (available in several languages)
6 step screening
Learn how to perform your own oral cancer screening with Check Your Mouth 
check your mouth
Oral Health and Oral Hygiene during cancer treatments can improve quality of life
The mouth is connected to the rest of the body. Oral health and oral hygiene can greatly affect other systemic issues; cancers and treatments for cancers are no exception. This webinar will address simple, yet effective ways to incorporate oral care into the oncology treatment plan to help reduce risks of infections, improve quality of life and potentially treatment outcomes. Learn More.
The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.
The Leukemia & Lymphoma Society mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. 
The Oral Cancer Foundation is a national public service, IRS registered 501(c)3 head and neck cancer charity, designed to reduce suffering and save lives through prevention, education, research funding, advocacy, and patient support activities.
The Cancer Journey Institute is the nation's first cancer coach training organization. We help survivors and caregivers make meaning from their personal cancer experience by transform how others go through their Cancer Journey.
  My Cancer Journey
Cancer U is an online membership platform for cancer patients and cancer caregivers to empower, educate, and engage them to become advocates for themselves during their cancer journey to improve outcomes and reduce costs.
Cancer U
The Head and Neck Cancer Alliance's mission is to advance prevention, detection, treatment and rehabilitation of oral, head and neck cancer through public awareness, research, advocacy and survivorship.
Raising awareness of oral and head and neck cancer is an important part of SPOHNC’s mission. SPOHNC’s Chapters and additional volunteers help to raise awareness through many events, which include oral cancer screenings, educational fairs, tasting events, and move to music classes.
   Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.
Triage Cancer